Humans of Kidneyville is an Iya Foundation Act for Kidneys Initiative that aims to raise awareness of kidney disease and the need for organ donation by bringing to light the plight and needs of End Stage Renal Disease patients by sharing their kidney health stories and experiences.
Name: Jessica Frysz
Age when kidneys failed/diagnosed: 11 months old.
Cause of Kidney Failure:Atypical Hemolytic Uremic Syndrome
Transplant: Currently not transplanted, awaiting transplant.
Advice for people without kidney failure: My advice for people without kidney failure but who know there is a history of it in their family is to get tested for it early. If no history exists, cherish your kidneys; keep them working as long as possible.
Advice for someone who has been newly diagnosed with kidney failure: For newly diagnosed patients, don’t be afraid to ask questions; don’t be afraid to ask questions about your health. Advocate for yourself when it comes to your health and be as self-sufficient as you can. Dialysis does not mean you have a death sentence; you can do what you want to do, as long as you have the determination to do so.
Would you say there’s Hope after diagnosis? There is hope after diagnosis. I am living proof of that. I have been doing this for 27 years and my birthday just past. Prayer, I will admit has allowed me to stay here on earth. I have had some days where I didn’t believe I would see life without dialysis, because I have seen so many patients get their kidneys before me.
What’s the most difficult aspect of living with kidney disease? The most difficult aspect about living with kidney disease for so long is that it causes scheduling restrictions, which causes problems with trying to find work. Dating can be difficult too, because guys don’t understand the intensity of the situation and often times can’t handle it.
How important is having a support system? To have a good support system while going through kidney disease is vital. Without a good support system, this disease can overwhelm your life and take over. Support such as a fellow patient can help, but family is important most of all. You can choose your friends, and friends come and go, but family will be there no matter what.