Rosa Ochoa – Humans of Kidneyville Act for Kidneys Initiative

Humans of Kidneyville is an Iya Foundation Act for Kidneys Initiative that aims to raise awareness of kidney disease and the need for organ donation by bringing to light the plight and needs of End Stage Renal Disease patients by sharing their kidney health stories and experiences.


Name: Rosa Ochoa
Age when kidneys failed/diagnosis: 41 years old
Cause of Kidney Failure: Lupus
Number of years with kidney failure: I have been on dialysis for 41/2 years.
Transplant: Not yet. I am still waiting for my angel to come my way.
Advice for people without kidney failure: I advise people without kidney failure to listen to their body, get regular checkups and eat healthy.
Advice for someone who has been newly diagnosed with kidney failure: Get regular checkups with their cardiologist. I had a heart attack at 46 years old, four months ago now, and I have high blood pressure, as well as a leak in my heart. I have to take a lot of medicines. Make sure to care for and manage your heart problems.
Would you say there’s Hope after diagnosis? Yes there is hope after diagnosis. I am on the transplant wait list.
What’s the most difficult aspect of living with kidney disease? The most difficult aspect of living with kidney failure is being tired all the time and not spending enough time with my two beautiful daughters that need me the most right now. One of them is nine, and the other is 13. We used to do a lot of sports and activities together, but not anymore. I miss that the most.How important is having a support system? It is very important to have a support system. I have a very good one with my family. I do dialysis at home with the help of my husband. We went for training for three weeks, and now I stick in my own needles. I feel so much better now doing it from home. I do it every day except for Fridays.
Last thoughts: Thank you very much for giving me this opportunity, I hope my story will help somebody.