{"id":4509,"date":"2020-02-11T01:07:31","date_gmt":"2020-02-11T06:07:31","guid":{"rendered":"https:\/\/theiyafoundation.org\/?page_id=4509"},"modified":"2023-01-06T09:12:47","modified_gmt":"2023-01-06T14:12:47","slug":"humans-of-kidneyville","status":"publish","type":"page","link":"https:\/\/theiyafoundation.org\/humans-of-kidneyville\/","title":{"rendered":"Humans of Kidneyville"},"content":{"rendered":"

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About The Project<\/h5><\/div><\/div>[vc_column_text css=”.vc_custom_1673013735674{margin-bottom: 0px !important;padding-bottom: 0px !important;}”]Humans of Kidneyville is an Iya Foundation Act for Kidneys Initiative that aims to raise awareness of kidney disease and the need for organ donation by bringing to light the plight and needs of End Stage Renal Disease patients by sharing their kidney health stories and experiences.[\/vc_column_text][\/vc_column][\/vc_row][vc_row tlg_background_style=”bg-secondary” css=”.vc_custom_1673014363368{margin-top: 0px !important;margin-bottom: 60px !important;padding-top: 10px !important;padding-bottom: 40px !important;}”][vc_column][vc_row_inner css=”.vc_custom_1673013696802{border-bottom-width: 1px !important;padding-top: 10px !important;padding-bottom: 20px !important;border-bottom-color: #e5e5e5 !important;border-bottom-style: solid !important;border-radius: 1px !important;}”][vc_column_inner width=”1\/3″][vc_single_image image=”2721″ img_size=”full”]
Kyra Mizer Lark<\/h5><\/div><\/div>[\/vc_column_inner][vc_column_inner width=”2\/3″][vc_column_text]<\/p>\n

Name<\/strong>: Kyra Mizer-Lark
\nCause of Kidney Failure<\/strong>:\u00a0Pyelonephritis<\/a>, which ultimately ended in End Stage Renal Disease
\nNumber of years with kidney failure<\/strong>: 22 years
\nTransplant<\/strong>: Yes. I have had two transplants. They were both from cadaver donors. I received the first one on January 18th<\/sup>, 1995. It rejected a year later. The second one was on December 27th<\/sup>, 1999, and it rejected September 2012. I am currently on dialysis.
\nAdvice for people without kidney failure<\/strong>: The advice that I have for people living without kidney disease is to take care of themselves by living as healthy as possible and to get regular checkups concerning their blood pressure, which is one of the leading causes of kidney disease, especially for African Americans.
\nAdvice for someone who has been newly diagnosed with kidney failure<\/strong>: My advice for people who have been newly diagnosed with kidney disease is that, they should educate themselves about the different options for treatment including peritoneal dialysis, hemo dialysis, and home hemodialysis. I urge them to consult with a dietician for the best diet for them and to exercise as frequently as possible as that would help keep them as healthy as possible and weight the options of them getting on the transplant list.
\nWould you say there\u2019s Hope after diagnosis?<\/strong>\u00a0Yes. It is important to know that kidney disease is not a death sentence, and it is possible to live a long healthy life on dialysis. There is extreme hope after diagnosis. So do kidney disease, don\u2019t let kidney disease do you.
\nWhat\u2019s the most difficult aspect of living with kidney disease?<\/strong>\u00a0The most difficult aspect of living with kidney disease is some of the side effects from the disease and dialysis. Both can wear a person down sometimes, as well as the time spent doing dialysis.
\nHow important is having a support system?<\/strong>\u00a0Having a support system is a very important part of being a kidney disease patient. We all need someone during these trying times of our lives. Overall, we are all warriors, fighting the GOOD fight and champions doing our best to cross the finish line.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_row_inner css=”.vc_custom_1673013673932{border-bottom-width: 1px !important;padding-top: 20px !important;padding-bottom: 20px !important;border-bottom-color: #e5e5e5 !important;border-bottom-style: solid !important;border-radius: 1px !important;}”][vc_column_inner width=”1\/3″][vc_single_image image=”2723″ img_size=”full”]

Maurine Krentz<\/h5><\/div><\/div>[\/vc_column_inner][vc_column_inner width=”2\/3″][vc_column_text]<\/p>\n

Name<\/strong>: Maurine Krentz
\nCause of Kidney Failure:<\/strong>\u00a0Undetermined
\nAge when kidneys failed\/diagnosed<\/strong>: 47
\nNumber of years with kidney failure<\/strong>: 15 years
\nTransplant?<\/strong>\u00a0Yes
\nAdvice for people without kidney failure:<\/strong>\u00a0Health Maintenance
\nAdvice for someone who has been newly diagnosed with kidney failure:<\/strong>\u00a0Research and Learn
\nWould you say there\u2019s Hope after diagnosis<\/strong>? Yes
\nWhat\u2019s the most difficult aspect of living with kidney disease?<\/strong>\u00a0Living with a suppressed immune system, and having to be germ-free.
\nHow important is having a support system?<\/strong>\u00a0Extremely important[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_row_inner css=”.vc_custom_1673013673932{border-bottom-width: 1px !important;padding-top: 20px !important;padding-bottom: 20px !important;border-bottom-color: #e5e5e5 !important;border-bottom-style: solid !important;border-radius: 1px !important;}”][vc_column_inner width=”1\/3″][vc_single_image image=”2722″ img_size=”full”]

Leslie Taylor-Simo<\/h5><\/div><\/div>[\/vc_column_inner][vc_column_inner width=”2\/3″][vc_column_text]Name<\/strong>: Leslie Taylor-Simo
\nAge when kidneys failed\/diagnosed<\/strong>: 11
\nCause of Kidney Failure:<\/strong>ANCA Positive Vasculitis<\/a>\u00a0 I am still pissed off my pediatrician did not give me a blood test. I had to go through six months of chemo and when my ANCA flipped to negative, I was thirteen.
\nNumber of years with kidney failure<\/strong>: 26. I did peritoneal dialysis for a year and a half.
\nTransplant<\/strong>: Yes. I had my first transplant, through a living donor; my mom, at age 13. Due to a chronic rejection, I went back on hemodialysis on March 7th<\/sup>\u00a02000. My second transplant received was through a deceased donor kidney on August 1st<\/sup>, 2000. It was an antigen mismatch, and it rejected immediately. I underwent\u00a0plasma pheresis<\/a>\u00a0and hemodialysis for a month, and the kidney worked for 3 years. I went back to hemodialysis in November, 2003. I received a third transplant on July 21st<\/sup>\u00a02005, through another deceased donor. That lasted 4 days short of ten years. It rejected because I became allergic to\u00a0Myfortic.<\/a>\u00a0I am currently on dialysis for the fourth time. I do the home hemodialysis, and have been listed again for a fourth kidney.
\nAdvice for people without kidney failure:<\/strong>\u00a0Kidney disease is a silent disease; do not dismiss it. Become an organ donor.
\nAdvice for someone who has been newly diagnosed with kidney failure:<\/strong>\u00a0Keep a positive attitude, and always take care of yourself.
\nWould you say there\u2019s Hope after diagnosis<\/strong>? There\u2019s always hope. Always. Mental health is as important as physical health.
\nWhat\u2019s the most difficult aspect of living with kidney disease?<\/strong>\u00a0The most difficult aspect is difficulty in travel and medical costs.
\nHow important is having a support system?<\/strong>\u00a0Support systems are for sure important. Every now and then, I feel defective, but my friends, family, and husband don\u2019t treat me like I have kidney disease\u2026unless I need to talk. Most are empathetic, or at least, sympathetic.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_row_inner css=”.vc_custom_1673013673932{border-bottom-width: 1px !important;padding-top: 20px !important;padding-bottom: 20px !important;border-bottom-color: #e5e5e5 !important;border-bottom-style: solid !important;border-radius: 1px !important;}”][vc_column_inner width=”1\/3″][vc_single_image image=”2715″ img_size=”full”]
Aime Rooze<\/h5><\/div><\/div>[\/vc_column_inner][vc_column_inner width=”2\/3″][vc_column_text]Name<\/strong>: Amie Rooze
\nAge when kidneys failed\/diagnosed<\/strong>: 31. I was diagnosed November 20th<\/sup>, 2014 with Stage 3 Chronic Kidney Disease. I am currently at Stage 4.
\nCause of Kidney Failure:<\/strong>\u00a0Morbid Obesity. Another contributing factor is that when I was growing inside my mother, one of my kidneys developed in an incorrect spot\u2026in my pelvis. Doctors aren\u2019t sure when exactly my kidneys started to fail, but I have somewhat of an idea. When I was 21, I received my CDL class A. I was living in Henderson, KY at the time, but doing a job orientation in Tulsa, OK. During my DOT physical, the doctor notice I had protein in my urine and decided to get me tested to see what was causing it. I ended up being misdiagnosed with a horseshoe kidney. A horseshoe kidney is when both kidneys fuse together. The doctor said the fusion was the cause of them spilling protein. Hence, for ten years, whenever I had to give urine sample, and the doctors noticed protein, I would tell them that I had a horseshoe kidney, and that would be it.
\nTransplant<\/strong>: As of right now, I haven\u2019t had a transplant. I am working on losing weight, so I can get on the list.
\nAdvice for people without kidney failure:<\/strong>\u00a0Protect your kidneys as much as possible. Stay away from medicines like Advil, Aleve, Ibuprofen, Motrin, etc. These medicines are called NSAIDS and will damage your kidneys. Once you\u2019ve damaged them, there\u2019s no undoing it. Make sure you get regular checkups and your yearly labs are done. Stay healthy. Had I known that being overweight would have caused my kidneys to fail, I would have dropped the weight.<\/p>\n

Advice for someone who has been newly diagnosed with kidney failure:<\/strong>\u00a0You are going to have good days and bad days. It\u2019s okay to cry. It\u2019s okay to get mad, and think \u2018why me\u2019. Know that there\u2019s a reason WHY you got kidney disease and it\u2019s because we are warriors. We are strong, and we can overcome this. Be your own advocate. Take a kidney smart class. Find a nephrologist who will be there for you and listen to them. Its ok to ask questions, and it\u2019s okay to be tired and not wash those dishes in the sink because you don\u2019t have the energy.
\nWould you say there\u2019s Hope after diagnosis<\/strong>? There is hope after diagnosis. How you control YOUR kidney disease is up to YOU.
\nWhat\u2019s the most difficult aspect of living with kidney disease?<\/strong>\u00a0The hardest part of living with kidney disease is the diet. I miss eating my favorite foods like greasy cheeseburgers and loaded French fries\u2026but it\u2019s my diet that got me here.
\nHow important is having a support system?<\/strong>\u00a0You definitely need to surround yourself with some great friends; and I am not talking about a pint of Ben and Jerrys. Join support groups. There\u2019s some on Facebook. Reach out to those who are also battling kidney disease. You are definitely going to need some strong friends to wipe away your tears, listen to you vent, and maybe even have that friend donate their spare kidney. If you ever need a friend, I am here. Just shoot me a message, and I\u2019ll be that friend.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_row_inner css=”.vc_custom_1673013673932{border-bottom-width: 1px !important;padding-top: 20px !important;padding-bottom: 20px !important;border-bottom-color: #e5e5e5 !important;border-bottom-style: solid !important;border-radius: 1px !important;}”][vc_column_inner width=”1\/3″][vc_single_image image=”2720″ img_size=”full”]

Jessica Frysz<\/h5><\/div><\/div>[\/vc_column_inner][vc_column_inner width=”2\/3″][vc_column_text]Name<\/strong>: Jessica Frysz
\nAge when kidneys failed\/diagnosed<\/strong>: 11 months old.
\nCause of Kidney Failure:<\/strong>Atypical Hemolytic Uremic Syndrome<\/a>
\nTransplant<\/strong>: Currently not transplanted, awaiting transplant.
\nAdvice for people without kidney failure:<\/strong>\u00a0My advice for people without kidney failure but who know there is a history of it in their family is to get tested for it early. If no history exists, cherish your kidneys; keep them working as long as possible.
\nAdvice for someone who has been newly diagnosed with kidney failure:<\/strong>\u00a0For newly diagnosed patients, don\u2019t be afraid to ask questions; don\u2019t be afraid to ask questions about your health. Advocate for yourself when it comes to your health and be as self-sufficient as you can. Dialysis does not mean you have a death sentence; you can do what you want to do, as long as you have the determination to do so.
\nWould you say there\u2019s Hope after diagnosis<\/strong>? There is hope after diagnosis. I am living proof of that. I have been doing this for 27 years and my birthday just past. Prayer, I will admit has allowed me to stay here on earth. I have had some days where I didn\u2019t believe I would see life without dialysis, because I have seen so many patients get their kidneys before me.
\nWhat\u2019s the most difficult aspect of living with kidney disease?<\/strong>\u00a0The most difficult aspect about living with kidney disease for so long is that it causes scheduling restrictions, which causes problems with trying to find work. Dating can be difficult too, because guys don\u2019t understand the intensity of the situation and often times can\u2019t handle it.
\nHow important is having a support system?<\/strong>\u00a0To have a good support system while going through kidney disease is vital. Without a good support system, this disease can overwhelm your life and take over. Support such as a fellow patient can help, but family is important most of all. You can choose your friends, and friends come and go, but family will be there no matter what.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_row_inner css=”.vc_custom_1673013673932{border-bottom-width: 1px !important;padding-top: 20px !important;padding-bottom: 20px !important;border-bottom-color: #e5e5e5 !important;border-bottom-style: solid !important;border-radius: 1px !important;}”][vc_column_inner width=”1\/3″][vc_single_image image=”2719″ img_size=”full”]
Jennifer Gloede<\/h5><\/div><\/div>[\/vc_column_inner][vc_column_inner width=”2\/3″][vc_column_text]Name<\/strong>: Jennifer Gloede
\nAge when kidneys failed\/diagnosis<\/strong>: 35. I learned that my lab results had showed that my kidneys were spilling protein, and their function had decreased.
\nCause of Kidney Failure:<\/strong>\u00a0Type 1 Diabetes
\nNumber of years with kidney failure<\/strong>: I have been living with kidney disease for approximately 8 years.
\nTransplant<\/strong>: No. In August of 2015, I was listed for a kidney and pancreas transplant.
\nAdvice for people without kidney failure:<\/strong>\u00a0My advice for people without kidney failure is to live healthy. If you are diabetic, take care of it. Take advantage of having energy and spend it on family and friends.
\nAdvice for someone who has been newly diagnosed with kidney failure:<\/strong>\u00a0I would tell someone just diagnosed with kidney failure the exact same advice. Live as healthy as you can, Make sure to follow the advice of your doctor, and spend your energy and time with family and friends. Housework can wait.
\nWould you say there\u2019s Hope after diagnosis<\/strong>? I have a lot of hope. There is no other choice. I go on for my kids and husband and other family. Being a part of some Facebook support groups has also helped because I get to meet others in the same situation as I am, and I see their hopes come true, and watch them thrive after transplant.
\nWhat\u2019s the most difficult aspect of living with kidney disease?<\/strong>\u00a0The most difficult aspect of this disease for me is having such little energy, and not being able to be as involved with my kids and husband. I don\u2019t even have the energy to walk my dog or go to the mall anymore. It\u2019s a chore just to get up, shower, and put my makeup on.
\nHow important is having a support system?<\/strong> Having a support system is imperative. I can\u2019t do what I used to be able to do, and having people support me not only includes them helping me do those things, they give me encouragement and remind me that I have 4 kids that need me to fight. You could follow Jennifer\u2019s journey at\u00a0https:\/\/m.facebook.com\/gloedekidneyjourney\/<\/a>[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_row_inner css=”.vc_custom_1673013673932{border-bottom-width: 1px !important;padding-top: 20px !important;padding-bottom: 20px !important;border-bottom-color: #e5e5e5 !important;border-bottom-style: solid !important;border-radius: 1px !important;}”][vc_column_inner width=”1\/3″][vc_single_image image=”2717″ img_size=”full”]
Ema Temu<\/h5><\/div><\/div>[\/vc_column_inner][vc_column_inner width=”2\/3″][vc_column_text]<\/p>\n
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Name<\/strong>: Ema Temu
\nAge when kidneys failed\/diagnosis<\/strong>: 27 years old
\nCause of Kidney Failure:<\/strong>\u00a0I developed End Stage Renal Disease
\nNumber of years with kidney failure<\/strong>: I lived with kidney disease fir 6 years.
\nTransplant<\/strong>: Yea. I received a kidney transplant on November 12th<\/sup>\u00a02009.
\nAdvice for people without kidney failure:<\/strong>\u00a0My advice for people without Kidney failure is to be understanding to people who do. Also, do frequent kidney checks as well.
\nAdvice for someone who has been newly diagnosed with kidney failure:<\/strong>\u00a0Having kidney failure is not the end of the world. Be active when it comes to your health. Ask important questions about your diagnosis and know your numbers, e.g creatinine level. Also know your medications and their side effects. Get to know your doctors and nurses because they are also an important part of your support system.
\nWould you say there\u2019s Hope after diagnosis<\/strong>? Absolutely, there is hope after diagnosis. For me, living a normal life was very important to me. It helped me to cope with the aspect of going to dialysis 3 days a week. Also, being around family and friends who support you is key, as well as connecting with other people who are going through the same health issues.
\nWhat\u2019s the most difficult aspect of living with kidney disease?<\/strong>\u00a0The most difficult aspect of living with kidney disease for me was being on dialysis. Dialysis was draining, and I was tired all the time. I had no energy, and after treatment, everything would hurt. Being on dialysis was very depressing and sad when I saw other patients pass away or even get sick while on treatment.
\nHow important is having a support system?<\/strong>\u00a0Having a support system is key to getting better. Having a support system in place, will allow you not to fail, and you will be able to remain positive in the face of adversity.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

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Cheryl McQueen-Milliner<\/h5><\/div><\/div>[\/vc_column_inner][vc_column_inner width=”2\/3″][vc_column_text]Name<\/strong>: Cheryl McQueen-Milliner
\nAge when kidneys failed\/diagnosis<\/strong>: 42 years old,
\nCause of Kidney Failure:<\/strong>\u00a0High Blood Pressure
\nNumber of years with kidney failure<\/strong>: 11 years
\nTransplant<\/strong>: I was on dialysis for 5 years and received a kidney transplant that lasted 41\/2 years. Unfortunately, the transplant failed, and I have been back on dialysis since July 2015. I do it at home with a nurse 5 days a week, for 21\/2 hours.
\nAdvice for people without kidney failure:<\/strong>\u00a0Keep your blood pressure and diabetes under control, since those are the leading factors that cause End Stage Renal Disease.
\nAdvice for someone who has been newly diagnosed with kidney failure:<\/strong>\u00a0It is not the end of the world. You can live a long productive life with kidney disease if you follow your doctor\u2019s orders and dialysis regime.
\nWould you say there\u2019s Hope after diagnosis<\/strong>? YES, there is hope after dialysis. I met my husband in dialysis, but he passed recentlyL. I travel to visit family and friends to keep me going. As long as there is Life, there is hope.
\nWhat\u2019s the most difficult aspect of living with kidney disease?<\/strong>\u00a0The most difficult aspect of dialysis is the fluid restrictions, the long periods of sitting, the effects of low blood pressure, and the exhaustion.
\nHow important is having a support system?<\/strong>\u00a0It is extremely important to have a support system to listen to you vent, to bring food (I can\u2019t cook), check on you, pray with you, and laugh with you.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_row_inner css=”.vc_custom_1673013673932{border-bottom-width: 1px !important;padding-top: 20px !important;padding-bottom: 20px !important;border-bottom-color: #e5e5e5 !important;border-bottom-style: solid !important;border-radius: 1px !important;}”][vc_column_inner width=”1\/3″][vc_single_image image=”2725″ img_size=”full”]
Tyrena Phillips<\/h5><\/div><\/div>[\/vc_column_inner][vc_column_inner width=”2\/3″][vc_column_text]Name<\/strong>: Tyreena Phillips
\nAge when kidneys failed\/diagnosis<\/strong>: 21 years of age
\nCause of Kidney Failure:<\/strong>\u00a0End Stage Renal Disease, Focal Glomerularitis
\nNumber of years with kidney failure<\/strong>: 12 years
\nTransplant<\/strong>: Yes. On September 18th<\/sup>\u00a02014
\nAdvice for people without kidney failure:<\/strong>\u00a0Never give up. Keep the faith.
\nAdvice for someone who has been newly diagnosed with kidney failure:<\/strong>\u00a0It is nothing to be ashamed of; you are never alone.
\nWhat is Hope to you<\/strong>? Hope to me means you are not alone and your time is coming.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_row_inner css=”.vc_custom_1673013673932{border-bottom-width: 1px !important;padding-top: 20px !important;padding-bottom: 20px !important;border-bottom-color: #e5e5e5 !important;border-bottom-style: solid !important;border-radius: 1px !important;}”][vc_column_inner width=”1\/3″][vc_single_image image=”2724″ img_size=”full”]
Rosa Ochoa<\/h5><\/div><\/div>[\/vc_column_inner][vc_column_inner width=”2\/3″][vc_column_text]Name<\/strong>: Rosa Ochoa
\nAge when kidneys failed\/diagnosis<\/strong>: 41 years old
\nCause of Kidney Failure:<\/strong>\u00a0Lupus<\/a>
\nNumber of years with kidney failure<\/strong>: I have been on dialysis for 41\/2 years.
\nTransplant<\/strong>: Not yet. I am still waiting for my angel to come my way.
\nAdvice for people without kidney failure:<\/strong>\u00a0I advise people without kidney failure to listen to their body, get regular checkups and eat healthy.
\nAdvice for someone who has been newly diagnosed with kidney failure:<\/strong>\u00a0Get regular checkups with their cardiologist. I had a heart attack at 46 years old, four months ago now, and I have high blood pressure, as well as a leak in my heart. I have to take a lot of medicines. Make sure to care for and manage your heart problems.
\nWould you say there\u2019s Hope after diagnosis<\/strong>? Yes there is hope after diagnosis. I am on the transplant wait list.
\nWhat\u2019s the most difficult aspect of living with kidney disease?<\/strong>\u00a0The most difficult aspect of living with kidney failure is being tired all the time and not spending enough time with my two beautiful daughters that need me the most right now. One of them is nine, and the other is 13. We used to do a lot of sports and activities together, but not anymore. I miss that the most.How important is having a support system?<\/strong>\u00a0It is very important to have a support system. I have a very good one with my family. I do dialysis at home with the help of my husband. We went for training for three weeks, and now I stick in my own needles. I feel so much better now doing it from home. I do it every day except for Fridays.
\nLast thoughts:\u00a0<\/strong>Thank you very much for giving me this opportunity, I hope my story will help somebody.[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row]<\/p>\n","protected":false},"excerpt":{"rendered":"

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